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Diabetes doesn’t have to lead to disordered eating

Those diagnosed with type 1 diabetes are more than twice as likely to experience an eating disorder than people without, yet specialists continue to encourage carbohydrate-counting and food logging. How can diabetics avoid sliding down the slippery slope of disordered eating?

Finding a balance between the right intake of food versus insulin is a dilemma diabetics face from the very outset of their diagnosis. So it’s only natural that, at the start, they will tend to lean on their practitioners for guidance.

Unfortunately, while diabetics might get the right physical health support, they often find themselves feeling at a loss with their mental health. Glucose levels fluctuating lead to an overwhelming sense of feeling out of control, which feeds the need to micromanage that which is still in their control, including food and exercise regimes.

‘But everyone with diabetes – whatever the type – should be able to find a place of food freedom and enjoy an easy relationship with food,’ says Beth Edwards, a Bant-registered nutritional therapist with an MSc in health psychology.

‘It takes awareness, grace and a lot of patience,’ she adds.

Edwards, who helps people with type 1 diabetics to find balance and live better through nutrition, gentle coaching and lifestyle support, says disordered eating as a diabetic can encompass myriad behaviours, including the restriction of insulin to lose weight, also known as diabulimia.

Type 1 diabetes is when the body attacks the pancreas, which in turn stops functioning properly and the body loses its access to a reliable source of insulin. Insulin is needed to help the glucose that enters our bloodstream from our food and drink intake to be turned into energy.

Without it, glucose builds up, but we can’t produce the energy we need to do everyday things.


Food management

Food plays an intense role in type 1 diabetics’ lives, because everything we eat has the potential to impact our blood glucose levels (BGLs) and this can lead to complicated feelings around food and restriction, Edwards says.

One way food directly impacts our insulin regime is if BGLs go out of range after a certain food. ‘So removing that food might feel safe,’ Edwards adds.

For years after she was diagnosed, the practitioner was afraid of eating bananas. She tells me that fruit is often something on the list of restricted foods, so she didn’t allow herself to eat bananas.

‘It’s easy to see how those of us with type 1 diabetes can view food as good versus bad, or allowed versus avoided, or why we would sacrifice steady BGLs for a bit of the forbidden fruit,’ Edwards says.

To best manage our levels, specialists teach diabetics how to carbohydrate count, an activity that requires daily measurements of carbohydrate intake, accompanied by an injection of insulin to cover that food.

Edwards explains that this may also require an individual to establish a ‘carb ratio’ – for example, one unit of insulin to 10g of carbohydrates. It is an effective management tool, but what gets left behind is the emotional and psychological impacts that result from measuring food in this way, she noted.

‘Food is so much more than how many carbohydrates it contains,’ she says. ‘It’s about connection with loved ones, it’s comfort, it’s taste, it’s a restaurant outing or a Friday night takeaway.’

Though counting carbohydrates is an ‘inevitable’ part of managing type 1 diabetes, we’re seeing more psychological support available – especially for children and families, she says. Although the availability of these services is often a ‘postcode lottery’.


Diabulimia

Type 1 diabetics will usually have lost a lot of weight in a very short amount of time before they are diagnosed, but this is often reversed after they start taking insulin.

Insulin, according to Diabetes UK, is a growth hormone, which will encourage your cells, and in turn your body, to grow. If you have a balanced diet and lifestyle, your body weight will return back to its normal level after a couple of weeks.

For those in eating disorder recovery, or who have suffered with a past of disordered eating, this weight gain will feel like you have “failed” or “given in” to food. You might start feeling guilty, which may lead to trying to control how much food you intake, lessen your insulin dose, or, sometimes, over-exercise.

It is especially hard when the individual’s weight loss has been noticed and commented on positively, Edwards noted. She tries to remind clients that these positive affirmations of weight loss due to a serious medical condition are not positive at all.

Meanwhile, the weight gain is perfectly healthy, and may be an important part of the recovery.

The science and bio individuality of weight gain is very complex and not merely down to ‘more insulin equals more weight’, Edwards says.

‘It’s easy for people with type 1 diabetes to fall into this belief system which can lead to complicated and often negative feelings about insulin,’ she adds.

In her clinic, she spends a lot of time reminding her patients that insulin is an ‘amazing life-giving liquid’ and that when they were feeling poorly in hospital at the time of their diagnosis, this was because their body was being starved of insulin.

She often also likens insulin to calories – the diet industry wants you to believe they are to be shunned and limited, but they are little bundles of energy that allow you to live a full life, Edwards says.


Long-term disordered eating management

Going forward, it’s all about balance. Edwards tells her clients to follow the 80/80 rule, which means achieving 80% of their glycaemic goals for 80% of the time.

‘We’re not looking for perfection, and striving for unrealistic BGLs goals can take away from quality of life, food freedom and happiness,’ she notes.

Edwards adds that while it’s all too easy for people with type 1 diabetes to focus on the minute-by-minute management, it’s better to zoom out and look at overall control across a 24-hour period – or across a few days.

And when it comes to the carbohydrate counting, she says she uses the ‘eye-ball technique’, which means patients can avoid weighing their food, and instead use apps like Carbs & Cals which demonstrates what a real-life portion of food looks like on a plate and its corresponding carbohydrates.

If you do find yourself struggling with food, however, it is important to talk to someone – whether that is a partner, a family member, or a specialist.

‘Life with type 1 diabetes can be a lonely gig, and a tough one, but you don’t have to suffer in silence,’ Edwards says.

There are loads of online resources too, like BEAT, Young Minds, and Diabulimia Helpline and Diabetics With Eating Disorders.

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