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Exclusive – Sophie Szew on the mental health crisis and policy reform

We spoke to activist, writer, and public speaker Sophie Szew about her community-focused approach to healing and how she is using that vision to influence the future of government mental health policies. 

‘My personal experiences shape my advocacy in that my personal experiences were my path to advocacy,’ says Sophie Szew, an award-winning poet, youth mental health activist, and advocate for policy reform within the U.S. federal government.

Sophie’s response to my first question is a taste of the honest, no-nonsense energy I’ll become privy to throughout our call. She’s everything you’d expect from a Gen Zer working with government leaders to improve their mental health policies – sharp-witted and driven by challenging the status quo. I like her already. 

Her impressive accolades – winning the Woorilla Poetry Prize, giving testimony in front of the California State Senate Judiciary, and meeting with former US President Joe Biden – are the result of being impacted by the systemic issues she is now dedicating herself to resolving. 

‘I really care about finding and helping others find words to describe their experiences in order to connect us to each other. I think that’s the foundation for building the power and solidarity required to enact the change we need to see,’ says Sophie.  

Her journey began unwittingly, as a 10-year-old discovering the boundless possibilities of Instagram’s explore page. Picking up on her interest in DIY videos and healthy recipes, the algorithm quickly spun Sophie’s recommended content into strict diet and exercise regimes. After implementing this advice into her everyday life, the algorithm rewarded her with more of it.

It wasn’t long before her social media homepage was dominated by pro-eating disorder content.

 

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Over the next few years, Sophie would be in and out of hospital, receiving treatment for an illness she believes may have never developed if proper online safeguards had been in place. And like many reliant on the healthcare system, Sophie felt the full scope of her experience had failed to be acknowledged. While visible progress towards healing was taking place, invisible wounds went unaddressed.

‘There was a lot of shame about what I was going through,’ Sophie tells me. ‘I felt very isolated, and you can’t really talk about a problem until you realize that there are words to describe it, and until you realize you are not the only one going through it.’ 

During one hospital stay, Sophie reached out to her English teacher who was receiving cancer treatment. They discussed mental health, grief, and their non-linear paths to healing. These conversations exposed the healthcare system’s shortcomings, many of which Sophie would process and shed light on through her poetry. 

‘The ability to put language to the experiences I went through when I was institutionalized for an eating disorder and other mental health conditions was really what empowered me to share my story. Those words came poetically for me, at least at first.’

Winning the Woorilla Poetry Prize for these works in 2021, Sophie ramped up her mental health advocacy, exploring how government strategies aimed at addressing individual struggles could be improved by adopting a more community-focused approach.  

‘Growing up Jewish, I’ve always had a strong connection to my spirituality and community,’ Sophie tells me. ‘The United States and most other countries treat mental health in a way that is siloed from communal health, from physical health, from spiritual health. Treating health as an individual issue rather than a communal one is something that, from the get-go, created a lot of dissonance for me.’

For Sophie, the journey to healing would come most effectively when connecting with others and when framed as not just benefitting herself, but her entire community. 

‘We talk a lot about self-care in the mental health advocacy space, but it’s often co-opted from its original intent which was for Black feminists to be able to meet their basic needs in a very radical way,’ Sophie points out. 

‘The idea that we should work towards healing ourselves, one another, and our society in order to heal our systems isn’t something that is supported by mainstream society,’ she continued. 

Sophie is referring to the Black Panther movement, when women in the party practiced feminist self-care as a political and radical act of self-love and self-preservation.

In this context, self-care was as an act of appreciation and acceptance for one’s mind and body as it was and is, a way to build up energy to resist oppression and discrimination, and to live a full life in an unequal world.

‘Once I understood that I needed to meet my own needs in order to contribute to uplifting and healing my community, that’s when the concept of self-care really began to resonate,’ she explains.  

Sophie’s community-centric approach to wellbeing is a far cry from the highly individualistic self-care advice we’re sold by major corporations. She points out that this is not unintentional, that current systems of power thrive on offering, ‘individual, short-term distractions and cures that keep us rooted in the day to day.’ 

While Sophie admits that a bubble bath and a face mask certainly isn’t hurting anyone, she recommends placing more focus on how each of our actions and interactions – no matter how small – could contribute to a larger framework of healing. Luckily, for the youth of today, this isn’t a hard concept to grasp. 

‘Gen Z has done a really good job realizing that we’re being sold individual band-aids for systemic bullet holes,’ Sophie says. ‘Healing those systemic wounds takes communal power. It takes us working together and it takes us working intergenerationally to heal them.’

Intergenerational communication is especially vital to making progress, Sophie says, and it’s why she serves on the National Advisory Council for the Substance Abuse and Mental Health Services Administration (SAMHSA). 

While striving to influence policy by meeting with those in positions of power, Sophie has noticed a pattern of disillusionment about the issues they believe young people face. 

‘Conversations with policymakers can divulge into unhelpful, broad thinking, for example: “How can we get young people to turn off their phones?”’ Sophie illustrates. ‘Young people – when invited into the room – can redirect the conversation to: “How are you, our leaders, going to make it so that young people feel like we have systems of support in person? How are you going to protect our safety in online spaces and in the day to day?”’ 

She offers up another example. ‘A young person might say, “My biggest mental health struggle right now is that I feel anxious about going to school.” Instead of pushing them straight into the mental healthcare system, we should ask “Why is that?” And then we can talk about gun violence, which is a systemic issue.’ 

‘So as you can see, there’s this big intergenerational gap between the “solutions” people in power are offering us and what young people actually view as problems. There’s a bridge that needs to be built to fix this gap in understanding,’ she tells me. ‘Only then can we work together to find those deeper solutions.’

Last year, Sophie had an opportunity to bridge this gap when she took part in the MTV Youth Action Forum. She was one of thirty young people invited to the White House to speak with President Joe Biden, the First Lady, and the Surgeon General about issues relevant to our generation within mental health.

‘That brought a lot of attention to the administration’s investment in their mental health agenda, but also to the unfortunate and shocking fact that this hasn’t been done before,’ Sophie says, offering her perspective on the experience. 

‘Why don’t we see more young people in the room with those writing and implementing the policies that affect their generation, or even better, being the ones to write and implement those policies?’

These shortcomings are visible throughout the entire system, and Sophie notices them whether she’s at the White House, completing internships in Congress, or working in her current advocacy role within the government. 

Through each of her experiences, Sophie has found that current healthcare systems lack the nuance to deal with the unique needs and identities of people today. 

She points to rigid, binary ways of thinking as one of the reasons why existing systematic approaches to mental health are failing so many people. 

‘The current system relies on categorising certain behaviours or ways of being as ‘good’ or ‘bad,’ meaning we end up forcing people into classifications to decide whether to give them resources or deny them resources. But the problem is that most people don’t fall into those strict guidelines. 

‘People act in different ways based on their positions in the world, based on the context they were raised in, on the context they exist in, and that changes throughout their lives too,’ Sophie tells me, and it sounds like common sense – so why isn’t it?

‘The way Gen Z sees it is: things are not just one thing or the other. You cannot and should not categorize people into one group for the sake of making them easier to deal with. While having access to certain labels can be necessary in order to assign resources, the underlying issue is that so much boxing in needs to happen for the system to function, that it eventually doesn’t line up with how we truly exist in the world.’

When asked how Trump’s return to office could impact mental health policy and youth involvement shaping it, Sophie delivers the hard truth, which is that having our basic needs met is soon to become even more difficult for many. This is a scary thought, she admits, but this fear is already being turned into action, with grassroots community efforts starting to gain serious momentum. 

‘People are addressing their community’s needs themselves by building groups of care on and off social media, doing things on campuses to help each other, and seeking support from their families to address issues,’ says Sophie.  

She goes on to acknowledge that marginalised groups – in the face of systems that are not and have never been set up to meet their needs – have been supporting each other on a community level for time immemorial. 

Sophie says that uplifting these communities while following their lead will be key to ensuring everyone is receiving the care they need. 

‘Learn about the role of self-care and what it was initially meant to do. What kinds of care have been denied historically and to whom, and what did they do about it?’ Sophie says. ‘We can use this as, essentially, our survival guide.’ 

Throughout our conversation I’ve noted Sophie’s impressive unwillingness to vilify social media, despite the harm it’s caused her personally. In fact, she remains an avid user of some platforms, viewing them as a powerful community building tool when used correctly.  

‘A lot of people like to think that Gen Z’s most pressing mental health issue is social media – the time that we spend on it, the harmful content that we might engage in, and the isolation that it’s causing. But I’d say those are all can be viewed as symptoms for much larger issues.

‘Social media is just a tool that those issues become projected upon.’ Sophie states. ‘A lot of us feel harmed and isolated in our day to day lives, so we turn to online platforms to find and seek community and find and seek ways to heal each other.’

 

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For those who feel unsure of how to begin their journey into mental health advocacy or getting involved with activism, Sophie assures them that there’s a good chance they probably have already started. 

‘There’s resistance in simply meeting your own needs and meeting your community’s needs when something isn’t being provided to you. I consider that to be resistance against oppressive systems, which is activism at its core,’ she tells me. 

‘Now it’s just a matter of feeling that empowerment, which – like I said in the beginning – happens through language and within community.’

In terms of what the future looks like, Sophie remains optimistic. Engaging with others who are dedicated to creating change and witnessing them get involved in their own communities, she feels confident that young people will continue to get louder while identifying creative solutions to help care for one another. 

And whilst there is still a lack of awareness amongst older generations and policymakers about the work that young people are doing, Sophie is looking forward to forming new bridges of communication to close those gaps in intergenerational understanding. 

‘I am excited to continue connecting with our elders and others who might not be youth, but who care about youth, to show them how we’re building our communities stronger for one another, and how they can support us.’

For Sophie, a key part of that is appreciating the wisdom and work of those communities and changemakers who came before. ‘I want to continue to root myself in the knowledge, in the history of people that have been doing this work for so many generations.’

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